Forgetfulness and Chronic Illnesses

Forgetfulness is a common experience, but for those of us living with chronic conditions, it can be more visible. I've been reflecting on how my mental health has been impacted by living with multiple chronic conditions, particularly HIV, which I've managed for over 25years. Over time, I’ve noticed subtle but significant changes in my memory and focus.

At home, my kids often tease me about my forgetfulness. They remind me of things multiple times, jokingly saying, “Papa, you forget!” I respond with a laugh, saying, “I’m just experiencing a delayed response.” While it’s true that we all forget things as we age, my experience feels different. It’s not as if I forget my name or where I live; it stems from my body and brain having dealt with more challenges than what a “healthy” person might face at my age.

Being aware of these changes has led me to develop strategies to manage my limitations. Every morning, I write a to-do list to help keep me on track. Concentration is tougher; my mind can feel foggy, making me feel slow. To manage this, I deal with important tasks early in the morning when I feel most alert. If you’ve ever received a text from me at 4 a.m., now you know why!

Additionally, I’m focusing on eating healthily and staying physically fit, which I’ve learned can benefit my brain health—my wife might chuckle at that one.

I recently discovered I’m not alone in this experience. A friend shared her own struggles with me: "Hi Pholo, I used to think HIV didn’t affect the brain, but it really does. Before my diagnosis, I had mental agility and a good memory. Now, I struggle with both long-term and short-term memory, and my reading speed has declined. It’s tough." When I shared her message on social media, many others echoed similar experiences:

•         "I thought I was alone and that it was the efavirenz, but I’m in the same boat. I function normally, but it takes me longer to think and remember."

•         "I thought it was just because I’m over 40. I’m studying now and can relate—my brain just isn’t as sharp."

•         "Yep, it’s HIV Associated Neurocognitive Disorder (HAND), which worsens with age. We need tailored programs that consider aging and geriatric syndromes for people living with HIV, especially those 50 and older."

Research supports the connection between chronic conditions and mental wellness. Dr. Nwabisa Shai, a Senior Researcher at the South African Medical Research Council, notes, "Living with chronic conditions like HIV, diabetes, or hypertension often brings the stress of managing multiple health aspects. This can affect cognitive function, making it harder to concentrate or remember things. Mental health support, stress reduction techniques, and adherence to treatment are crucial for maintaining overall well-being."

The takeaway from this reflection is that we must acknowledge the challenges of living with chronic conditions and find ways to manage them. As for me, I’ll continue to explore solutions and adapt as needed. This is how I’m living my life beyond chronic conditions.

What’s your story?

#diaryofpr #lifebeyond #pholoramothwala #mentalconditions #chronicillnesses